After being in way to much pain for several days I decided to look my symptoms up. I had been thinking for like a year now that it was all Endo related…but the sensations were so strong last night that I had thoughts of life in a wheel chair. It scared me into action so I hopped on line to try and figure it out.
I searched over about 5 web pages before I found one that actually described the pain in detail. I would post the link but now I can’t find the web page. Any how, I am certain that this is causing most of my symptoms that I can’t find words to describe. It kinda feels like a mix of everything, cooling, burning, numbing, tingling, itching, and twinging! It drives me crazy! My Dad suggested an epidural. That helped his and the pain has never come back. I think I will go to my chiropractor first and try a round of Spinal Decompression -if that doesn’t do the trick then I will ask for an epidural. If I could get this under control I could get a lot more done!
I thought that it was just Endo pressing on certain nerves or nerve damage from the surgery -but maybe I was wrong all along, and maybe I don’t have to suffer!
NOW that’s EXCITING!
All this time it was my Sciatica nerve! March 8, 2009
How I was Dx with Endometriosis March 7, 2009
Today has been a been a bit of a mess. I am trying to sort through my emotions, trying to decide what is real vs what emotions are coming from the hormones . I am feeling guilty -(like that’s anything new) not because I have done anything wrong but rather because of what I did not do. I want to be intimate with my sweet husband, but the surge of hormones always leaves me with a n intense almost migraine like headache that last all day! I can sometimes handle the pain that most women with Endo have during intimacy by taking 550 mg of Naproxen, some sort of energy drink, and using olive oil. ( My OBGYN suggested that I try Crisco shortening because its impenetrable, and doesn’t rub off easily, but I can’t bring myself to take it to the bedroom yet. I am sticking with the Olive Oil) It has cut down the irritation and sensitivity, before during and after, but it’s no cure all! Most days I just don’t feel like it. I men I just don’t feel like going through all that just to have it ruin my day – with the aftermath pain. Oh and I have officially kicked the energy drink habit, I have only had about 5 over the past 2 years! I was young I did not know how badly sugar can effect people with auto immune disorders. 3 yrs of about 3-4 Red Bulls. or Mad crock’s a day reeked havoc on my fragile system! Now I am almost 28yrs old and although I still push myself and feel like I carry the weight of the financial burden, I know better. Thanks to many women like you who have listened to me and given me support and resources for knowledge growth and healing. My next door neighbor’s brother is my doctor. He’s great! He is first an Osteopath, second a Homeopath and third a MD.
He truly has helped to change my life! We did a glucose test last summer, and when he looked at the results he said are you sure we gave you that fruit drink? I guess there wasn’t a sugar spike or something -I still don’t know what that means…anyway, I told him about the Endo, and how we had been TTC for 2 years without a single pregnancy. I told him about the countless Dr. visits and about the Laparoscopy, that I had in Nov.07 that finally gave me a Dx of Endo. He said that he wanted to treat the Endo first and then we’d work on getting pregnant. That is when he asked my if I would be willing to try the Bio Natural/Identical Progesterone. I started on it at 50mg CD1-13 and then 100mg CD 14-27. At that time we were still TTC and that helped to mimic my normal cycle. In January after my sweet husband was Dx with SERTOLI CELL ONLY SYNDROME I decided to launch a full scale attack on the Endo!
I went to see my OBGYN . Remembering what he had told hubby back in November 07 after the Lap, I was highly nervous. He had told hubby that he strongly suggested that I go on Luron ASAP. Here I was over 1 year later going to discuss treatment options with him…much to my surprise it went very well! We talked about Lupron, the pro’s con’s and how it sometimes doesn’t work. I told him that I was worried about it causing future cancer, and a loss of bone density. My family is what I would all highly arthritic! I also told him about the Bio-identical Progesterone that I was taking. after talking everything out thoroughly, I told him how much the progesterone cost me each month and his eyes lit up! My cost was far cheaper than the option he was considering -he told me to up the dose to 100 mg every night for the next 6-9 months and them come back in for a check up. The Progesterone should by all accounts shut down my cycles. I am in the middle of my 3rd cycle and AF has been cut down from 8 days to 4 days on cycle 1, 3 days on cycle 2, and about 2 1/2 -3 days here on cycle 3. So I am hoping that in a few months AF wont show her ugly head at all.
As for how long it took to be Dx. That took years! My Mom never had bad periods growing up and had a hysterectomy at age 25 due to Fibriod Tummors ,and allready having 3 kids. So when I became of age and has terrible periods that lasted about 7-8 days, with all kinds of pain in the middle of my cycle and throughut -she couldn’t understand it. I never saw a doctor about it until July of 2007! When I first got married in early 2006, and complained of the pain during and after intimacy my old OBGYN just said that it was because I was a newly wed and had been a virgin before marriage, so it would get easier in time. But it never did! I went to see a Dr in July of 07 because I had such bad abdominal cramping and twinges, and sharp stabbing/ twisting/ burning pains -I was sick of living like that. My Dr said that he suspected Endo and gave me a list of OBGYN’s to choose from. I looked at him and said ” which one would you want your wife to see” and I went with that one! About 3 months later I had my Lap and was Dx with stage 2 Endo with large Ovarian Cysts, and they also found a nasty little hernia.
Wow! So That’s my story so far. My head is still killing me!
I still have so much work to do today – I had better get to it.
Cycle#3 -Day 5 on Bio-Identical Progesterone March 4, 2009
Cycle#3 -Day 5 on Bio-Identical Progesterone -
I think I am doing better… It might just be the green tea that I started drinking in the afternoon. I have been taking so many vitamins that I get from vitacost.com, and exedrine, and Naproxen, as part of my daily regime for about 5 months now and I think that has helped with the fybromyalgia and fatigue – but today nothing is helping! My whole body feels like dead weight. Oh well, no pain no gain I guess.
I have a million things to do today -Thank the Lord for pain killers! Sorry for all this random jabber, I just can’t seem to concentrate on anything ritght now.
“Tired” Never “Did” Anything February 14, 2009
I can’t believe how tired I am today! I have allraedy taken 4 Exedrine “migarine” and 2 naproxen at 550mg each – nothing seems to work! Years ago I would have just loaded myself up on energy drinks like Red Bull and Mad Crock! I gave those up about 3 years ago. I was worried about the consequences later on in life.
I feel pretty worthless! Don’t we all? Any way it is valentines Day and my husband has been so sweet. He always is, but today he made me 2 love song Cd’s 1 with fast songs and one with slow . He gets an A for effort! He also helped me organize our food storage in the basement wich really helps take off some stress for me. I hate buying things that we allready have downstairs.
I would really like to get some work done today, but I just can’t find the energy. I have a lot of blankets that I want to make for this week, (MinkyBabyBlanket) but the simple thought of standing and measuring and cutting the fabric is using up any energy that I might have had! I called my mom. to vent and she started talking to me about a Dr. that she thinks I should see. She wants me to get tested for RA. How does she know these things? My arthritis has been really acting up the past two weeks – more than I can ever remember before. I am wondering if it’s due to the added sugar that I have been eating? I usually stay away from sugar, but I can’t seem to resist the Valentine sugar cookies! Yum!
My MIL has been looking at property in Florida. Her and her new hubby want to move there. We have been looking up the addresses of the places that they are looking at, and quite frankly it sacres me! Don’t get me wrong I’m all about the fixer upper but she isn’t that kind of lady. She needs a fast pace enviroment. and a house that isn’t falling apart.
Ok I really wish someone would come over and fold laundry for me, but when you never feel good you don’t make a lot of social connections out side of the internet world… some days I would give anything if someone would just show up on my doorstep and say “what can I do?” and actually mean it!
that’s enough venting for today – my wrists and hands hurt and they wot stop itching -
Starting a New Therapy – Bio Identical Progesterone February 11, 2009
Wed. 2/11/09
Today has been a crying shame! I have started a new therapy for treatment of my Endo and I swear it makes me feel like I am loosing my mind! Although the alternative treatment option Lupron Depo, would be far worse! My current treatment is a fairly new treatment call Bio-Identical Progesterone. The only info on the web that I can find is all about using it as a topical cream,yet the kind I take is sublingual. I have taken birth control pills before and they turned me into a monster! I vowed I would never do that again. Plus birth control can lead to bone loss and osteoporosis! Who want’s that?! Anyway back to today -
Toady is CD-11 and my body is really taking a beating! Natrualy there is so much Estrogen running through me and I am trying to fight it with the 100 mg of Bio-Identical Progesterone, but it’s taking it’s toll. Not only am I so tired I could sleep till Christmas, but I have this nasty headache that won’t go away. I am a bit snippy but I am not as irritable and mean as I am when I was on BCP. Unless you catch me searching the net for new Endo info. – then I can be irritable! It’s all the same old garbage! There has got to be a better way, and I am dead set on finding it!
I would really ove to take a walk with my sweet husband before it starts to snow again, but that area where my pelvis meets my legs( there has got to be a name for that somewhere) hurts in an insane way! Everything aggrevates it! Sitting, standing, driving, all I can do is lay down and hope for momentary relief! Actaully I think I will – the pain is killing me!
Ednometriois Has a Voice! February 11, 2009
Hi, My Name is Kate and I have been wanting to get the word out about Endometriosis for a long time now. I don’t even know where to start! There is only a handfull of information out there that can help us and those around us understand the vast far reaching effects of this often debilitating disease. That is why I have started this blog. Because women everywhere need a voice and they need to be heard! Endometriosis is not going away infact the Diagnosis of Endometriosis is on the rise. The more information we have the better off we will be!
This Blog will be filled with my daily experiences as I battle Endo as well as great resources for help and healing, TTC, charting, clinincal research, ect…
